Kyla has some bowl issues that have been going on for a long time. I guess pretty much since she was a baby. She has a hard time having bowl movements. About a year and a half ago our pediatrician put her on some laxative powder twice a day to help her because she was so constipated and said she sees this all the time and not too worry about it. She also got some blood tests done and an x-ray because I pushed for it and they came back normal. She is still on the powder and if she misses she gets really constipated and it really affects her. I really don't like the fact that she has to be on a laxative twice a day for this long. The doctor said it can take a while (up to a year) before she won't need it anymore and I could slow down her doses after her body gets used to it and her bowls start to work on their own again. But, I can't slow them down, she goes right back to being constipated. Last Christmas was really hard, she was not herself and it was really hard seeing her like that. I took her to the doctor again and she said she was fine just to keep giving it to her and even increase it for a while.
I had a check up for Laken last month and asked the pediatrician about Kyla because nothing has really changed and she said she is just stubborn and won't go and brushed it off and that we have to make her sit there until she goes. She actually goes fine when she has her powder and has no problem so it didn't really make sense. But i'm not the best sometimes at giving it to her and it messes her up when we miss etc. I have always had in the back of my mind that something else is going on, I just have had this feeling something isn't right. Kyla has always been a small girl. She weighed about 43lbs at the beginning of the school year. I took her to the doctor today to get referred to a specialist and he weighed her and she is only 37lbs. She is really under weight. That's a lot of weight to lose for a 5 year old. It breaks my heart and it's really hard to think about, all I want to do is cry. She is tiny, if I hold her arm, all I feel is bone. None of her pants fit her because she has no waist. It's really hard to think about it.
I can see when she isn't doing good. I can see it in her face and her eyes. She gets purple under eye circles and her face looks sick and loses it's color, she almost looks grey and she is worn out. She doesn't have that happy bright face she normally has. She is always hungry and could eat all day and eats seconds of every meal so I know she is getting nutrients and food in her. She definitely doesn't have enough bowl movements a day to keep up with what she eats. Most of the time she is ok and acts normal when she is on her powder regularly so I kind of forget about it and just hope it'll work out on its own. But if I miss a day of medicine or anything like that it messes her up all over again and we have to start fresh. So I try and get her back on track and hope it'll pass and eventually get normal. But it hasn't and that's why I went to our doctor and made him refer us to a specialist. I didn't even ask what he thought I just told him what I wanted. This was our family doctor this time, who she has seen a few times about it, as well as our pediatrician. Neither of them seem too concerned and I think that's why i've put it off so long, but I don't care anymore because I want to do everything I can to help her. I'm also going to have my mother in law look into getting her in down south because the Doctor today told me it's at least a 6 month waiting list. So i'm going to see what we can do to get her in sooner somewhere.
I don't want her to be sick anymore or have any problems. I want her to be her normal self and not have to worry about going to the bathroom and going from one extreme to the other within days. I hate it. I'm praying we can find out what's wrong with her because it's been too long and I don't want her to be on this laxative anymore. I want her to be healthy.
I love this girl and it's the hardest thing seeing your child struggling with their health. I'm praying it will all work itself out and we can figure out what is going on. I want her to be able to live her life and not worry about taking her "medicine" everyday.
Goodness I love that face. Let's hope we will finally get some answers!
Here's to staying positive!